Thursday, 1 June 2017

Epilepsy 0 Me 1 ~ finding my confidence again

This post is part of the Epilepsy Blog Relay which will run from June 1 through June 30. Follow along and add comments to posts that inspire you!

6 weeks ago I achieved a lifelong goal I thought I would never be able to achieve due to my epilepsy, I completed the London Marathon.  I haven’t really shared this on my blog so I thought this would be a great opportunity to do just that.

Rewind 12 years…

I was just about to start university and living life to the full, I loved running and my dream was to run the London Marathon one day.  I was walking back from a training run and the next thing I knew I was lying confused and sore in the road… looking back now that was my first seizure.

I went to university and while running with athletics club I collapsed again, this time people saw what happened and a few weeks later a neurologist diagnosed me with epilepsy based on their accounts.  I was in shock and felt like I had lost all confidence in myself along with my independence.

A few weeks later and I had a seizure on a treadmill, that was it, my confidence was completely in tatters and I no longer wanted to do any sport let alone run.

Coming to terms with my diagnosis

There were some dark months when I started medication and came to terms with what living with epilepsy really meant but slowly I started to turn it into a more positive things.  I started to share my story with other through volunteering for Epilepsy Action and the amazing website Youth Health Talk.

Over the years my epilepsy has seemed to settle down only to raise its ugly head again just as my confidence started to improve.  However all the time I have felt that it gave me purpose to help others and that is what kept me going.  I have also met some incredible people on my journey who inspire me every day.

One year seizure free… I want to run a marathon

Finally I was a year seizure free and to celebrate I decided to start training for the London Marathon. Running was pretty scary at first, I was worried about seizures but as I trained I realised that running had a lot of positive effects especially on my mood which my medications tend to impact on.

The more I ran and the further I ran the more confidence I gained in my own body again.  By the time I smashed through the 30km training run mark I felt like I was proving to myself that maybe just maybe my epilepsy might really be controlled, something I have really struggled to believe having lived with seizures for 10 years.

My top tips for running with epilepsy:
  • Always tell someone where you are going for a run and how long you plan to be, having a find your friend app really helps put everyone's mind at ease too.
  • Build up slowly and don't over do it, I started training a year before using the couch to 5k app.
  • Consider a seizure alarm, I have an Embrace epilepsy monitor and it has been great running.
  • Make sure you don't run if you are unwell, haven't eaten or didn't sleep well the night before especially if these are triggers for you.
  • Try mindfulness exercises to help reduce anxiety and help with pre-race nerves.
  • Make sure you are very visible so lots of high-vis clothing and lights for the dark winter nights.
  • Make sure you have water and fuel (gels or sweets) with you specially when running longer distances.
Marathon Day

Training was hard, training was lonely and training really impacted on family time so I was pretty relieved when marathon day arrived as it was the end of a hard six months devoted to slowly building up the miles, trying to avoid triggering a seizure.

But most of all I was so excited, finally I had the opportunity of achieving my life goal.  The atmosphere is amazing and I loved every minute of my marathon run.  The crowds really do carry you most of the way round.  I also dedicated a mile to each of the people I have met on my epilepsy journeys who have inspired me and made me the person I am today.  The final mile I ran for my amazing family, and I was in tears that last mile, tears of joy that I was stronger than epilepsy that I could achieve my goals and that I had made it so far. 

When I crossed that finish line I was in tears, someone asked if I needed a first aider and I said no, these are tears of joy, this just means so much.  Because it really did it marked a huge turning point for me, it helped me to believe my epilepsy was controlled, finally after so many years and I also hope it helps other people with epilepsy aim for their goals whatever they maybe.

Image may contain: 3 people, people smiling, people standing, people sitting and child
So I am sharing this today, hopefully to inspire someone to try something they don’t think they can achieve no matter how big or small that challenge might be because if you succeed suddenly you realise you are stronger than epilepsy and if you don’t quite make it today, tomorrow is a new day and another chance to show epilepsy who is boss.

NEXT UP: Be sure to check out Karen’s post tomorrow at Living Well With Epilepsy for more on epilepsy awareness. For the full schedule of bloggers visit livingwellwithepilepsy.com.

Don’t miss your chance to connect with bloggers on the #LivingWellChat on
June 30 at 7PM ET.

10 comments:

  1. Am One of the happiest woman on earth since my son was cured from the problem of seizure,which he has been having for eight years now,he do have the attack two to three times a week,which is affecting is education and his life.i got the contact of a doctor from the post of one Mr paul thanking him for curing his seizure problem,i got the contact and contacted him then he made me to know that the medication is a permanent cure, and that was how i got the medication which i used on my son,and for six month now there have been no sign of seizure in him again.any one with such problem can contact him on his email drwilliams098765@gmail.com

    ReplyDelete
  2. ALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DON FOR MY FAMILY.This information will be useful for Epilepsy patients who is willing to use herbal medicine. My daughter had temporal lobe epilepsy, She had seizure and had a grand mal with rage episode. Our daughter's seizure is constant throughout the day. We had used several medicine which include: Epilim and Keppra, experience seizure control at the cost of serious debilitating side effects. It was during a casual conversation with a friend that I learned about herbal Dr. William, it does not have any side effect. I am glad to say that he has been seizure-free since July of 2015 after taking William medicine. this a miracle cure?contact him for more detail (drwilliams098765@gmail.com)

    ReplyDelete
  3. NATURAL & EFFECTIVE TREATMENT TO SEIZURE: Our son has temporal lobe epilepsy, He has seizure and had a grand mal with rage, Our son's seizure always occur twice in a week according to EEG results. We had used several medicine which include: 600 Epitol 100 Zarontin,
    150 Epitec X2 Daily, Topomax lasted for about 3 days, but I put an end to that due to my son losing weight and being lethargic. I recently got dr williams herbal medicine,that's a natural medicine that cure my son Epilepsy with no side effect. It is an herbal medicine. it is a permanent cure and effective treatment of Epilepsy, for more info, you can also contact Dr.William with this email drwilliams098765@gmail.com for advice and his product

    ReplyDelete
  4. WOW ALL THANKS TO DR WILLIAMS I HAVE NEVER BELIEVE IN HERBAL REMEDIES.
    my son have been a patient of epilepsy . I had tried a lot of anti viral med prescribed to me by doctors over how many years now but I could not see any improvements in my son symptoms. One day while going through the internet , i got to know about this great Herbal Dr who uses his herbal remedies in curing people from epilepsy,quickly i contacted him and he prepared a herbal medication for my son which i received and he used it as instructed by dr williams. After few weeks the improvement were very visible. the sleepiness and the abnormal behavior stooped ,on thing now he is so full of life. I would recommend this to all my friends,families,around the globe suffering from epilepsy.you can contact him through his email on drwilliams098765@gmail.com.for advice and for his product THANKS TO YOU ONCE AGAIN DR WILLIAMS

    ReplyDelete
  5. Am One of the happiest woman on earth since my son was cured from the problem of seizure,which he has been having for eight years now,he do have the attack two to three times a week,which is affecting is education and his life.i got the contact of a doctor from the post of one Mr paul thanking him for curing his seizure problem,i got the contact and contacted him then he made me to know that the medication is a permanent cure, and that was how i got the medication which i used on my son,and for six month now there have been no sign of seizure in him again.any one with such problem can contact him on his email drwilliams098675@gmail.com

    ReplyDelete
  6. I am Sophie from Canada, I once suffered from a terrible and Chronic epilepsy ,since i was bone , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly go out of breath,and this illness was really terrible especially when am going out with my friends, i have this constant disorder for about 31 years, this was really a terrible illness ,on thin one day that i was going through the internet,and i came across a post of Mrs Kate on how his son was been cured from epilepsy through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine i used it for 4 weeks as prescribed and i was totally cured of epilepsy within those week of usage,on thin now i have not experience any sign of seizure.if you need his help you can Contact this herbal doctor via his email drwilliams098675@gmail.com for help

    ReplyDelete
  7. Hi Clair,

    My name is Anuj Agarwal. I'm Founder of Feedspot.

    I would like to personally congratulate you as your blog Becoming a Mum... with Epilepsy has been selected by our panelist as one of the Top 50 Epilepsy Blogs on the web.

    http://blog.feedspot.com/epilepsy_blogs/

    I personally give you a high-five and want to thank you for your contribution to this world. This is the most comprehensive list of Top 50 Epilepsy Blogs on the internet and I’m honored to have you as part of this!

    Also, you have the honor of displaying the badge on your blog.

    Best,
    Anuj

    ReplyDelete
  8. ALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DON FOR MY FAMILY.This information will be useful for Epilepsy patients who is willing to use herbal medicine. My daughter had temporal lobe epilepsy, She had seizure and had a grand mal with rage episode. Our daughter's seizure is constant throughout the day. We had used several medicine which include: Epilim and Keppra, experience seizure control at the cost of serious debilitating side effects. It was during a casual conversation with a friend that I learned about herbal Dr. William, it does not have any side effect. I am glad to say that he has been seizure-free since July 2015 after taking William medicine. this a miracle cure?contact him for more detail (drwilliams098765@gmail.com)

    ReplyDelete
  9. Don’t think of anything else just contact Dr Abalaka and purchase some of his herbal medication and your depression will go away. This was my state of mind when my doctor told me that i will not be able to conceive due to the Fibroid that was rolling in my family life and when i decide to reach out to the priest, and the Priest told me what to do in other to get the medication. Eventually I receive all the Herbal medications that cure my Fibroid and give me the chance to become a proud mother: Dr Abalaka is a great spiritualist, He did it for me, you can contact Dr on (dr.abalaka@outlook.com). If you are suffering from the following gynecology disease::
    Fibroid
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    Infection, regular body pains
    Blockage from the fallopian Tube
    Cyst from the ovaries
    Unpleasant smell from the virginal
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    Weakness of the penis (not able to have sex with your partner or inability to satisfy your partner sexually)
    Watering sperm (low sperm count) not able to get woman pregnant.
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    Those are the things he does, You can simply contact the spiritualist Dr Abalaka on (dr.abalaka@outlook.com) to get his Herbal Medication to cure your disease and put yourself on a motherhood side of life..

    ReplyDelete
  10. THANKS TO DR EWOIG FOR CURING MY SON
    My son has partial epilepsy for the past 18 years. Dr's have tried various means but he has seizures almost every month. The first epileptic occurred when he was five years old. i took him to a specialist who subscribed anti-epileptic medication. From then on he had to take four capsules per day, but most of the time he had seizures until I got to know about Dr.ewoig product to cure epilepsy. we order for the product, now i can tell you my son is now living a better life thanks to dr ewoig His herbal remedy is the only permanent solution to Seizure. You can always contact him through his email for more information(johnewoig18@gmail.com)

    ReplyDelete